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X-ORIGINAL-URL:https://16pfoundation.org
X-WR-CALDESC:Events for 16p Genetic Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261013T150000
DTEND;TZID=America/Los_Angeles:20261013T160000
DTSTAMP:20260930T183716Z
CREATED:20260930T183618Z
LAST-MODIFIED:20260930T183716Z
UID:3074-1791903600-1791907200@16pfoundation.org
SUMMARY:Advancements in Research and Clinical Care for 16p11.2 Genetic Syndromes
DESCRIPTION:Our special guest host Dr. Carly Demopoulos of UCSF covers the topic Speech. Whether your family is newly diagnosed or has been navigating 16p11.2 for years\, you do not want to miss this opportunity. \nRSVP for zoom access: https://redcap.link/CTCSeries \nPresentations and questions will be recorded and available post event at: https://ihdd.org/research/core-facilities/clinical-translational-core/
URL:https://16pfoundation.org/event/advancements-in-research-and-clinical-care-for-16p11-2-genetic-syndromes/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/09/event-demopoulos.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261001T110000
DTEND;TZID=America/Los_Angeles:20261001T120000
DTSTAMP:20261005T154227Z
CREATED:20260930T182955Z
LAST-MODIFIED:20261005T154227Z
UID:3071-1790852400-1790856000@16pfoundation.org
SUMMARY:Call to Action: 16p11.2 Advocacy Session
DESCRIPTION:Join us for Session 7 of the 16p Webinar Series: Bridging the Gaps\nCall to Action: 16p11.2 Advocacy Session
URL:https://16pfoundation.org/event/call-to-action-16p11-2-advocacy-session/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/09/event-webinar7.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260903T150000
DTEND;TZID=America/Los_Angeles:20260903T160000
DTSTAMP:20261005T153120Z
CREATED:20260921T164828Z
LAST-MODIFIED:20261005T153120Z
UID:2993-1788447600-1788451200@16pfoundation.org
SUMMARY:Webinar - Session 6
DESCRIPTION:From Confusion to Confidence in Special Education – Bridging the Gaps\, Session 6
URL:https://16pfoundation.org/event/webinar-test/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/09/event-webinar6.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260818
DTEND;VALUE=DATE:20260819
DTSTAMP:20260930T182728Z
CREATED:20260928T160345Z
LAST-MODIFIED:20260930T182728Z
UID:3037-1787011200-1787097599@16pfoundation.org
SUMMARY:Webinar - Session 5
DESCRIPTION:16p11.2 Duplication: What is Happening in the Brain and Body – Bridging the Gaps\, Session 5
URL:https://16pfoundation.org/event/webinar-session-5/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/09/event-webinar5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260804T150000
DTEND;TZID=America/Los_Angeles:20260804T160000
DTSTAMP:20261005T153829Z
CREATED:20261005T153324Z
LAST-MODIFIED:20261005T153829Z
UID:3108-1785855600-1785859200@16pfoundation.org
SUMMARY:Webinar - Session 4
DESCRIPTION:16p11.2 Duplication: What is Happening in the Brain and Body – Bridging the Gaps\, Session 5
URL:https://16pfoundation.org/event/webinar-session-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/10/event-webinar4.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260723T150000
DTEND;TZID=America/Los_Angeles:20260723T160000
DTSTAMP:20261005T153704Z
CREATED:20261005T153442Z
LAST-MODIFIED:20261005T153704Z
UID:3110-1784818800-1784822400@16pfoundation.org
SUMMARY:Webinar - Session 3
DESCRIPTION:Education that Empowers: Building Better Outcomes Together – Bridging the Gaps\, Session 3
URL:https://16pfoundation.org/event/webinar-session-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/10/event-webinar3.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260710T150000
DTEND;TZID=America/Los_Angeles:20260710T160000
DTSTAMP:20261005T153604Z
CREATED:20261005T153604Z
LAST-MODIFIED:20261005T153604Z
UID:3112-1783695600-1783699200@16pfoundation.org
SUMMARY:Webinar - Session 2
DESCRIPTION:Exploring the New Online Home for the 16p11.2 Community – Bridging the Gaps\, Session 2
URL:https://16pfoundation.org/event/webinar-session-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/10/event-webinar2.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260625T150000
DTEND;TZID=America/Los_Angeles:20260625T160000
DTSTAMP:20261005T153958Z
CREATED:20261005T153958Z
LAST-MODIFIED:20261005T153958Z
UID:3117-1782399600-1782403200@16pfoundation.org
SUMMARY:Webinar - Session 1
DESCRIPTION:
URL:https://16pfoundation.org/event/webinar-session-1/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/10/event-webinar1.jpg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251002T130000
DTEND;TZID=America/Los_Angeles:20251004T110000
DTSTAMP:20261007T154242Z
CREATED:20260928T154917Z
LAST-MODIFIED:20261007T154242Z
UID:3027-1759410000-1759575600@16pfoundation.org
SUMMARY:2025 Deletion Conference
DESCRIPTION:The 2025 16p11.2 Deletion Conference brought together families\, clinicians\, and researchers for three days of shared learning\, practical guidance\, and connection. \nThe conference featured research updates\, clinical discussions\, and expert‑led sessions covering care models\, clinical trial results\, speech and communication\, mental health\, metabolism\, and ongoing care across the lifespan. Family breakout sessions provided focused space to discuss caregiver stress\, sibling considerations\, transitioning to adulthood\, and educational considerations. \nBy combining science\, clinical insight\, and lived experience\, the conference aimed to directly inform care while strengthening community connections.
URL:https://16pfoundation.org/event/2025-deletion-conference/
LOCATION:Hilton Anaheim\, 777 W Convention Way\, Anaheim\, 92802\, United States
ATTACH;FMTTYPE=image/jpeg:https://16pfoundation.org/wp-content/uploads/2026/09/event-2025-conf.jpeg
ORGANIZER;CN="16p11.2 Genetic Foundation":MAILTO:info@16pfoundation.org
END:VEVENT
END:VCALENDAR