Our Finances

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Commitment To Transparency

At the 16p11.2 Genetic Foundation, transparency is a core principle of how we operate. We believe our community and supporters deserve clear insight into how resources are managed and how contributions advance our mission.

To uphold this standard, we make all relevant financial information available here on our Finances page, including annual reports, IRS filings, and other key documents. These materials provide a detailed view of how donations are allocated to support research, advocacy, practical resources, and programs that directly benefit individuals and families affected by 16p11.2.

Our commitment is simple:
Every dollar entrusted to us is used responsibly, ethically, and in direct alignment with our mission.

Form 990s

Click below to download the PDF form.

Impact Reports

Click below to download the PDF form.

IRS Approved 501c3 Certified Nonprofit Organization

Our Non-Profit Status

The 16p11.2 Genetic Foundation is a not-for-profit corporation recognized by the IRS as a 501(c)(3) tax‑exempt organization.

All U.S. contributions are tax‑deductible to the fullest extent allowed by law. Tax ID: 88-3066433

Gold Transparency 2026 badge

Give with Confidence Our Candid Gold Seal of Transparency

When you choose to support the 16p11.2 Genetic Foundation, you deserve to know that your generosity is handled with care and integrity. That’s why we maintain a Candid Gold Seal of Transparency—a recognition that shows we openly share detailed information about our mission, leadership, finances, and impact.

The Gold Seal helps donors clearly understand:

  • How funds are used to support programs, families, and research
  • Who leads and guides the organization, including governance and oversight
  • What goals we are working toward and how we measure progress
  • What impact your gift makes in the lives of those affected by 16p11.2

By earning this seal, we provide you with the clarity and visibility you need to make informed giving decisions. It reflects our commitment to accountability—and our belief that trust is the foundation of every donation we receive.

When you donate, you’re supporting a mission grounded in transparency, responsibility, and meaningful impact.

Your trust matters. Your support changes lives. Thank you for giving with confidence.