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2025 Deletion Conference

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2025 16p11.2 Deletion Conference

Connecting Families, Clinicians, and Scientists

This conference brought together families, clinicians and researchers to directly impact patient care.

Conference Overview

The 2025 16p11.2 Deletion Conference brought together families, clinicians, and researchers for three days of shared learning, practical guidance, and connection.

The conference featured research updates, clinical discussions, and expert‑led sessions covering care models, clinical trial results, speech and communication, mental health, metabolism, and ongoing care across the lifespan. Family breakout sessions provided focused space to discuss caregiver stress, sibling considerations, transitioning to adulthood, and educational considerations.

By combining science, clinical insight, and lived experience, the conference aimed to directly inform care while strengthening community connections.

Conference Recordings

All individuals who attended the conference in person or purchased a virtual registration have access to the conference recordings. If you have not received an account activation email yet, please visit our legacy conference page, otherwise follow these instructions for access:

  • Follow this link to login to your account
  • Don’t know your username or password?
    • As a conference attendee, your username will be the email address you used when registering for the conference.
    • As a donor, your username is typically the email address used for donation receipt.
    • Reset your password here by entering the appropriate email address. Then check your inbox for instructions.
  • Still having trouble?
    • Check your spam/junk folder after requesting a new password.
    • Get in touch with us, and we’ll help locate your account information.

Didn’t attend the conference and want to see the full suite of video recordings?

We recognize that this cost may not be feasible for everyone. If the donation is a barrier, please reach out to us directly. We are committed to accessibility and will do our best to work with you.

Looking Ahead to Summer 2027

We are already looking ahead to planning our next conference, scheduled for Summer 2027. This future gathering will be thoughtfully designed to bring together both the 16p11.2 deletion and duplication communities, with programming that reflects shared challenges as well as important differences in care, development, and lived experience. By expanding the scope while maintaining depth, we aim to create a conference that supports meaningful learning, collaboration, and connection across the full 16p11.2 community. More details, including dates, location, and registration information, will be shared as planning continues.

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