Volunteer

An individual with prior project management skills in any industry to organize and manage 1-2 projects 2 hour commitment per week. Starting now until June 30th with possibility of renewal.

Date Needed: 01/31/26

An individual with prior experience in PR and social media to organize and execute campaigns such as fundraisers, news about the foundation and keeping the community informed. 4 hours per week commitment broken down sporadically throughout the week. Position lasting until July 2026 with possibility of renewal.

Date Needed: 01/31/26

An individual with experience making short professional videos for fundraising and advertising purposes. Would need to own project from start to finish and have experience with proper software to deliver videos. There are 3 current video projects to choose from ranging from high to low priority. End time would be at project completion which varies per project. Number of hours required based on project and volunteer expertise. Deadline for urgent video is February 28th.

Date Needed: 01/31/26

An individual with a background in policy or law who understands either the process of appropriations or medical insurance policy. 1-2 hour commitment per week. Starting now until March 30th with possibility of renewal.

Date Needed: 01/31/26

An individual with a medical background to assist with care coordination with centers of excellence. Prefer a passion for prevention. 2 hour commitment per week. Starting March 30th going for 3 months with possibility of renewal.

Date Needed: 03/30/26

An individual accounting skills to create realistic budgets for each project. 1-2 hour commitment per week. Starting now until May 30th with possibility of renewal.

Date Needed: 01/31/26

An individual with any legal background interested in any of the following: risk assessment with contracts, ICD codes and organizational risk assessment. Requiring 1-2 hours per week. Starting now until May 30th with possibility of renewal.

Date Needed: 01/31/26

Looking for passionate, reliable volunteers to join our event team. Volunteering is a great way to support our community, connect with families and advocates, and make a meaningful impact. This position would require time management skills, typing/computer skills and organization skills. Depending on the event to be planned, time required could vary from 5 hours a week to 20 hours a week.

Date Needed: 02/01/26

An individual that has experience with private and personal medical insurance companies, medicare/Medicaid, international medical care insurance on a professional level. 2 hours per week April through July 2026.

Date Needed: 04/01/26

An individual with medical and/or scientific research to guide and direct the scientific efforts of the duplication chapter. 1 hour onboarding, 1 hour monthly strategic planning with CEO, 1 hour weekly coordination with duplication chapter lead to give directions. Position for 3 months and renewable.

Date Needed: 02/27/26

An individual with expertise as a broker, agent, and consultant, who possesses deep knowledge of coverage details, compliance standards, and claims in helping clients select and manage their insurance plans in any US state or any other country. Entails 1 hour onboarding, 1 hour monthly strategic planning with CEO, 1 hour weekly coordination with both advocacy and chapter scientific advisors. Position for 3 months and renewable.

Date Needed: 02/27/26

An individual with expertise as an executive or administrative assistant who possesses knowledge of organizing meetings, schedules, calendars, professional demeanor and particular attention to details and systems. Technologically savvy. Entails 1 hour onboarding, 1 hour weekly spread out. Direct contact with CEO and all department directors. Position for 3 months and renewable.

Date Needed: 02/27/26

An individual in any country with a law or paralegal degree to advise regarding risk assessments, RDAs, MOUs and other contract experience. Ongoing and project-based work starting June 2026.

Date Needed: 05/15/26