Medical Disclaimer
Medical Disclaimer
Last Updated: 04.10.26
The 16p11.2 Genetic Foundation (the “Foundation,” “we,” “us,” or “our”) provides information through its website, programs, communications, and related materials (collectively, the “Resources”) for general educational and informational purposes only.
This Medical Disclaimer is incorporated by reference into the Foundation’s Terms and Conditions and applies to all users of the Resources.
Plain-Language Medical Information Summary for Families
1. No Medical or Genetic Advice
The contents of the Resources, including text, graphics, images, links, and other materials, are not designed to and do not provide medical advice, genetic counseling, professional diagnoses, opinions, treatments, or services to you or to any other individual.
The Foundation does not provide medical, genetic, diagnostic, or therapeutic services.
2. No Substitute for Professional Care
The information provided through the Resources is not a substitute for personal medical or genetic care.
You should not use information from the Foundation in place of a visit, call, consultation, diagnosis, or advice from a qualified physician, genetic counselor, or other licensed healthcare provider. Families should consult a medically qualified clinician in all matters relating to genetic diagnosis, medical management, and health.
Never disregard, delay, or avoid seeking professional medical advice because of information obtained through the Foundation.
3. No Professional Relationship
Use of the Resources does not create a:
- Doctor–patient relationship
- Genetic counselor–patient relationship
- Therapist–client relationship
- Research participant relationship (unless expressly agreed in writing under an approved protocol)
No professional duty of care is established between you and the Foundation or its staff, volunteers, advisors, or affiliates by virtue of your use of the Resources.
4. Genetic, Medical, and Scientific Limitations
Genetic and medical information is complex and continuously evolving.
Although reasonable efforts are made to present accurate information, the Foundation cannot guarantee that all content is current, complete, or free from errors or omissions. Even accurate information may not apply to your specific genetic, medical, or personal circumstances.
Accordingly, the Resources should not be considered exhaustive, definitive, or suitable for determining a course of treatment for any individual.
5. No Endorsements or Personal Advice
The Foundation does not recommend or endorse any specific tests, treatments, procedures, products, physicians, opinions, or other information that may be referenced in the Resources or linked third‑party content.
The Foundation will not respond to requests for personal medical or genetic advice.
6. Personal Responsibility and Use at Your Own Risk
Your use of the Resources is solely at your own risk.
You are responsible for how you interpret, use, or rely upon information obtained through the Foundation and for all decisions made based on that information, including discussions with your healthcare providers.
7. Emergency Situations
The Foundation does not provide emergency medical services.
If you believe you or someone else may be experiencing a medical emergency, call 911 (in the United States) or contact local emergency services immediately.
8. Research‑Related Information
References to research studies, registries, surveys, or participation opportunities are provided for informational purposes only. Viewing or discussing such information does not enroll you in a study or create a research relationship unless explicitly stated in a separate written agreement or informed consent document.
9. Third‑Party Links
Links to third‑party websites are provided for convenience and informational purposes only and do not constitute an endorsement unless expressly stated. The Foundation is not responsible for the content, accuracy, or practices of third‑party sites.
10. No Warranties
To the fullest extent permitted by California law, the Resources are provided on an “as is” and “as available” basis, without warranties of any kind, express or implied.
11. Limitation of Liability
To the maximum extent permitted under California law, the Foundation shall not be liable for any damages arising from or related to reliance on medical, genetic, or scientific information provided through the Resources, including direct, indirect, incidental, consequential, or punitive damages.
12. Acceptance and Updates
Your use of the Resources constitutes your agreement to this Medical Disclaimer. If you do not agree, you must discontinue use of the Resources immediately.
The Foundation may update this Medical Disclaimer from time to time. Changes will be effective upon posting. Continued use of the Resources constitutes acceptance of the updated version.
13. Contact Information
16p11.2 Genetic Foundation
Email: info@16pfoundation.org
Website: https://16pfoundation.org/about-us/contact-us