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Families affected by 16p11.2 genetic variants need reliable, easy‑to‑understand information they can trust. This section brings together timely updates and carefully curated tools to help families, caregivers, clinicians, and advocates stay informed, supported, and empowered throughout their journey.

News

The News page shares updates from the Foundation and the broader 16p11.2 community, including research highlights, foundation announcements, advocacy efforts, and important developments that may impact families. It’s the best place to stay current on what’s happening and what’s coming next.

Resource Library

The Resource Library is a curated, searchable collection designed to support families, clinicians, and researchers affected by 16p11.2 genetic conditions. It brings together trusted educational materials, peer‑reviewed research, and links to helpful programs, services, and advocacy organizations. Use filters or keyword search to quickly find resources tailored to your needs, stage, and specific 16p11.2 variant.

Webinars

Access recordings from our 16p Webinar Series: Bridging the Gaps. Held twice monthly, these presentations highlight how the Foundation is addressing gaps in knowledge, care, advocacy, research, and support for individuals and families affected by 16p11.2 syndromes. Watch at your own convenience and discover valuable insights, resources, and practical guidance. Together, we can ensure that no family has to navigate 16p11.2 alone.