Webinars

In this powerful session, Dr. Faranak Herrera, founder and CEO of the 16p11.2 Genetic Foundation, takes families inside the science of 16p11.2 deletion and breaks down complex genetics into information that can help us better understand our children and loved ones. Dr. Herrera explains how 16p11.2 deletion can influence brain development, neuroplasticity, movement, communication, learning, and behavior across the individual’s lifespan.

One of the biggest messages from this session is that different does not mean incapable. Understanding what is happening beneath the surface can help families and providers make more informed decisions about support and intervention.

• Knowledge gives families a stronger voice.
• Research gives us better answers.
• Collaboration moves our community forward.

Watch Session 4 and continue learning with us through the 16p Webinar Series: Bridging the Gaps. Together, we’re working toward a future where 16p11.2 knowledge is integrated into medical care, education, and community support.

Join Elise Hallett (Director of Strategic Partnerships & Community Education) for an inspiring conversation about the vision, goals, and impact of the 16p11.2 Genetic Foundation’s Education Department. Learn how we’re developing practical, evidence-based resources that empower families, supporting educators and healthcare professionals, and helping reduce fragmented care through shared knowledge.

During this session, we’ll discuss: why community education is one of the most powerful tools for improving outcomes; the resources being created for families, schools, and clinicians; how shared knowledge leads to better, more coordinated care; ways you can help by reviewing content, providing feedback, supporting translations, and sharing resources; meaningful ways to get involved without feeling overwhelmed. Whether you’re a parent, caregiver, self-advocate, educator, clinician, researcher, or advocate, your perspective is valuable. Together, we can build resources that truly meet the needs of our community.

Get a detailed walkthrough of the recently redesigned 16p11.2 Genetic Foundation website at 16pfoundation.org. Becky Oslund (Director of Initiatives, Operations & Digital Strategy) outlines Phase 1 features as well as the vision for the continuously evolving site to be a central, trusted hub of information and resources about 16p11.2 genetic conditions. Learn about future enhancements to the site and how you can get involved to support the Foundation.

Meet founder Dr. Franki Herrera as she discusses her personal journey with her son’s 16p11.2 deletion diagnosis and how the experience navigating a rare genetic condition without a clear path led her to create the Foundation. She outlines the common challenges that 16p families face when navigating care and explains how the 16p11.2 Genetic Foundation aims to address these gaps by connecting families, developing clinical care guidelines, and promoting scientific research and collaboration.