The 16p11.2 Genetic Foundation is excited to announce the launch of our new twice-monthly webinar series, 16p Webinar Series: Bridging the Gaps. Through this ongoing series, we will explore the many ways our Foundation is working to bridge the gaps in knowledge, care, advocacy, science, research, and support for individuals and families affected by 16p11.2 genetic variances.
For many families, a 16p11.2 diagnosis can bring more questions than answers. Families often find themselves searching for reliable information, connecting specialists across multiple disciplines, navigating educational systems, understanding emerging research, and seeking meaningful support from others who truly understand the journey. The challenges can feel overwhelming, and too often families are left to navigate them alone.
The goal of the Bridging the Gaps webinar series is simple: bring people together, share knowledge, and create stronger connections across the 16p11.2 community. Each session will focus on a different aspect of life with 16p11.2, highlighting practical information, current research, advocacy efforts, educational resources, clinical care considerations, and opportunities for community involvement. The webinars will also provide opportunities for participants to ask questions, learn about Foundation initiatives, and discover ways to get involved. The series will feature Foundation leaders, researchers, clinicians, educators, advocates, and family members working together toward a common goal: improving outcomes for everyone affected by 16p11.2.
At its core, this series reflects the Foundation’s belief that knowledge should be accessible, support should be available, and no family should have to face the challenges of 16p11.2 in isolation. Whether you are newly diagnosed, a long-time caregiver, a self-advocate, clinician, educator, researcher, or supporter, your perspective matters, and your participation helps strengthen our community.
Can’t attend live? We’ve got you covered. All webinar sessions will be recorded and made available through the Foundation’s YouTube channel and website, ensuring that families around the world can access the information when it is convenient for them. No one should miss out because of time zones, work schedules, caregiving responsibilities, or other commitments.
As we launch this exciting new initiative, we invite the entire 16p11.2 community to join us on this journey. Together, we can bridge the gaps that have historically separated families from information, research from practice, and diagnoses from meaningful support.
No family should have to navigate 16p11.2 alone. Join us as we work together to bridge the gaps and create a future where every individual affected by 16p11.2 has access to the knowledge, care, resources, and support they deserve.