2025 Deletion Conference

The 2025 16p11.2 Deletion Conference brought together families, clinicians, and researchers for three days of shared learning, practical guidance, and connection.

The conference featured research updates, clinical discussions, and expert‑led sessions covering care models, clinical trial results, speech and communication, mental health, metabolism, and ongoing care across the lifespan. Family breakout sessions provided focused space to discuss caregiver stress, sibling considerations, transitioning to adulthood, and educational considerations.

By combining science, clinical insight, and lived experience, the conference aimed to directly inform care while strengthening community connections.