About Us
Our Story
Our story as a foundation may be relatively new but the passion that drives us is not.
Our Team
Our team of volunteer parents has banded together through the shared purpose of seeking better outcomes for their children living with 16p11.2. Together, we seek to advance the mission of the Foundation
Gratitude
The 16p11.2 Genetic Foundation gratefully recognizes the Simons Foundation and Simons Searchlight for advancing research across rare genetic neurodevelopmental conditions, including 16p11.2. Families can strengthen research on 16p11.2 variations by joining the Simons Searchlight registry.
Credit: Michael Lisnet/Simons Foundation
Our Financials
We are dedicated to transparency and ethical stewardship of all funds that we receive. As such, we provide annual reports detailing our finances and the impact of every donation.
Our Quarterly Newsletter
Stay informed by subscribing to our quarterly newsletter where we provide practical, digestible information and guidance for 16p11.2 families.
Contact Us
Want to get in touch? Have questions? Reach out and let us know how we can help!